In the rural district of Neno, Malawi, a recent study has demonstrated the potential for significant improvements in palliative care through targeted training of healthcare workers. The research, conducted at Lisungwi Community Hospital, offers hope for expanding access to quality palliative care in resource-limited settings.
Palliative care, which focuses on improving the quality of life for patients with serious illnesses, remains largely inaccessible in many parts of the world, particularly in rural areas of low- and middle-income countries ((Grant el 2011).
AIM
This study, aimed to evaluate the implementation of palliative care services in Lower Neno, Malawi.
The Study Approach
The research was conducted in two phases. The first phase assessed the palliative care knowledge of local healthcare workers before and after a training intervention. The second phase evaluated patient-reported outcomes before and after the implementation of the new palliative care services.
Phase One: Healthcare Worker Training
A total of 16 healthcare workers, including medical assistants, clinical officers, and nurses, participated in a five-day palliative care training course. Their knowledge was assessed using a validated questionnaire developed by the African Palliative Care Association.
Key findings from this phase include:
- Pre-training knowledge scores averaged just 49.7%, highlighting a significant need for education in palliative care.
- Immediately after the training, scores improved to an average of 68.1%.
- Four months later, a follow-up assessment showed sustained improvement, with average scores of 70.5%.
This demonstrates not only the effectiveness of the training but also good retention of knowledge over time. The sustained improvement may be attributed to ongoing mentorship and the practical application of skills in patient care following the initial training.
Phase Two: Patient Outcomes
The second phase of the study used the African Palliative Care Association Palliative Outcome Scale (APCA POS) to assess patient experiences before and after the healthcare worker training (Harding et al 2010).
Significant improvements were observed in several areas:
- Pain management: The percentage of patients reporting no pain increased from 50% to 80% after the intervention.
- Symptom control: Patients reporting no troublesome symptoms increased from 45% to 75%.
- Communication: More patients reported being able to share their feelings freely with family and friends.
These results suggest that the training program had a direct and positive impact on patient care and quality of life.
Implications and Future Directions
The study’s findings have important implications for palliative care delivery in rural and resource-limited settings:
Targeted training can significantly improve healthcare workers’ knowledge and skills in palliative care.
- Improved provider knowledge translates to better patient outcomes, particularly in pain and symptom management.
- The APCA POS proves to be a valuable tool for assessing the quality of palliative care services in African contexts.
Recommendations
Christopher et al, recommend several steps to build on these promising results:
- Integrate palliative care training into pre-service education for all healthcare workers.
- Develop structured mentorship programs to support ongoing skill development.
- Expand the use of validated outcome measures like the APCA POS to continuously assess and improve care quality.
- Advocate for policies that support the integration of palliative care into all levels of the healthcare system, particularly in rural areas.
Challenges and Limitations
While the results are encouraging, the researchers acknowledge several limitations of the study. The small sample size and single-site design limit the generalizability of the findings. Additionally, the short timeframe between assessments may not capture long-term changes in practice or patient outcomes.
Despite these limitations, the study provides valuable insights into the potential for improving palliative care in resource-limited settings through targeted education and mentorship.
Conclusion
This research from Neno district, Malawi, offers a promising model for expanding access to quality palliative care in rural and underserved areas. By investing in the knowledge and skills of local healthcare workers, it may be possible to significantly improve the quality of life for patients with serious illnesses, even in settings with limited resources.
As the global burden of chronic and life-limiting illnesses continues to grow, innovative approaches like this will be crucial in ensuring that palliative care becomes accessible to all who need it, regardless of their location or economic circumstances. The success of this program in rural Malawi provides a beacon of hope and a potential roadmap for similar initiatives in other parts of Africa and beyond.
Reference
- African Palliative Care Association www.africanpalliativecare.org accessed on 20th July 2019
- African Palliative Care Association, 2013. Monitoring and Evaluation Palliative Care Education A frame work for palliative care educators and trainers in Africa 2013.
- Alwan, A. Maclean, D.R., Riley, L.M., et al 2010. Monitoring and surveillance of chronic non-communicable diseases: progress and capacity in high-burden countries. Lancet 2010; 376: 1861-1868
- Downing, J., Kivumbi, G., Grant, L., Murray, S.A., Namukwaya, E., Leng, M. A palliative care link nurse programme in Mulago Hospital, Uganda: an evaluation using mixed method. BMC Palliative Care BMC series –open, inclusive and trusted 2016 15:40. DOI:
- 10.1186/s12016-0115-6904.
- Harding, R., Selman, L., Simms, V.M., Penfold, S., Agupio, G., Downing, J., Gywther, L.,
- Ikin, B.and others .2013. How to Analyze Palliative Care Outcome Data for Patients in Sub-Saharan African: An International, Multicenter, Factor Analytic Examination of the African POS. Journal of Pain and Symptom Management, 746-752.
- World Health Organization (2004). WHO Definition of Palliative Care. Available from: http://www.who.int/cancer/palliative/definition/en/ [t accessed 27th July 2020].
- World Health Organization (2016). Planning and implementing palliative care services: a guide for programme managers. Available from:
- http://apps.who.int/iris/bitstream/10665/250584/1/9789241565417–eng.pdf?ua=1 Accessed 20 July 2020
Bina Mtawali
this is powerful