Logan was born with hydranencephaly, a diagnosis that his parents, Katherine and Kyle, were aware of before his birth. They diligently studied up on Logan’s prenatal condition, discovering that hydranencephaly is considered incompatible with life. Naturally, with such a diagnosis, there were physician led discussions surrounding discontinuation of the pregnancy. For Logan’s parents there was never a moment of hesitation. Katherine and Kyle were committed to the pregnancy of their first born, relying on their faith as they awaited on the arrival of their cherished son.
Logan entered our world at a robust weight of 8 pounds 5 ounces. His diagnosis was confirmed shortly after birth as his tightly knit family gathered to ensure they were present for every moment of his life. Logan astonished his physicians and family with spontaneous smiles, engaging with loved ones, and vigorously crying when hungry. Logan’s determination to live became evident to everyone. Katherine and Kyle were delighted to bring their boy home. Logan and his family joined our home paediatric hospice program upon discharge from the hospital. His sparkling blue eyes and desire to absorb every ounce of life endeared him to every soul he encountered.
Of course, the challenges associated with hydranencephaly requires multiple medications daily, close and frequent clinical oversight, and special accommodations to his home. For any infant, it would have been easy to be overwhelmed and cranky with all that was required to keep Logan at home and comfortable. However, it was as if Logan was mindful of his brief time on earth. He was intent on experiencing his life joyfully and gratefully. Logan’s mother, Katherine, and I met for coffee a few weeks ago. She is only 22 years old, but her eyes portray the type of wisdom that one acquires over a lifetime. She openly shares Logan’s story with others, she is a paediatric hospice advocate, and wishes to share the reasons paediatric hospice is a gift her family will be forever grateful for.
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