What will I want or need at the end of life? Will I suffer pain and need medication to manage my symptoms? How can I let my family & friends know my wishes and preferences for end of life care? What help is available to me? What decisions will I have to make?
Many Canadians are unsure what to expect at the end-of-life. This uncertainty often leads people to question how they want to die, and whether they should have more control over their dying. In our society, it can lead to a focus on controversial issues, such as those being debated in the Rasouli case.
The Canadian Hospice Palliative Care Association (CHPCA) believes it’s time to refocus the debate on the right to have high quality hospice palliative care for all Canadians at the end of life.
Hospice palliative care aims to relieve suffering and improve the quality of living and dying. It strives to help patients and families deal with important physical, psychological, social, spiritual and practical issues, and their associated expectations, needs, hopes and fears as these occur; promote opportunities for meaningful experiences and personal and spiritual growth as they prepare for dying and death ; and cope with loss and grief. Euthanasia, physician assisted dying or assisted suicide are not considered a part of the practice of hospice palliative care. [i]
We also believe that every Canadian should develop an advance care plan way ahead of being diagnosed with a life-limiting illness. Advance care planning is not necessarily about creating a document or writing things down, it’s more about having conversations with family, friends, health care professionals, and maybe even financial/legal professionals about preferences for care. To learn more about advance care planning and free resources through the “Speak Up: Start the conversation about end-of-life care” campaign, please visit www.advancecareplanning.ca.
The CHPCA believes it is time to shift the focus to the right to high quality hospice palliative care at the end of life. Let’s talk about hospice palliative care first.
To learn more about our “Let’s Talk About Hospice Palliative Care First” campaign, please go to www.chpca.net/hpcfirst
[i] Canadian Hospice Palliative Care Association, A Model to Guide Hospice Palliative Care: Based on National Principles and Norms of Practice, Canada: 2002.