A helpful 4 page summary of the UK’s National Institute for Health and Care Excellence (NICE) Guidance on End of life care for infants, children and young people with life-limiting conditions: planning and management
Published in December 2016, the guidelines aim to involve children, young people and their families in decisions about their care, and improve the support that is available to them throughout their lives. This guideline was commissioned with the aim to standardise end of life care for infants, children, and young people living with a life limiting condition, and thus promote equity and consistency.
The Guideline includes recommendations on:
- Advance Care Planning
- Emotional and Psychological support and interventions
- Managing distressing symptoms, such as pain, agitation, seizures or respiratory distress
- Hydration and nutrition
- Recognising that a child or young person is likely to die within hours or days
- Care and support for parents, carers and healthcare professionals after the death of a child or young person
- Care at home
Access to the four page summary of the NICE guidance is available to subscribers on the BMJ website which also provides a useful Infographic. For those who do not subscribe to BMJ, a 14 day free trial period is offered.