Author: Prof Julia Downing
The Guide to Children’s Palliative Care is now in its 4th edition and published by Together for Short Lives. It has been an essential document in the UK for all those with an interest in planning, funding and delivering services and care for babies, children, and young people with life-limiting and life-threatening conditions, and their families. It provides a 360-degree insight into children’s palliative care: what it is, its principles, purpose and importance to seriously ill children and families who need it.
The Guide seeks to establish and realise the vision that all of these children and their families have access to and receive comprehensive, high-quality, evidence-based services delivered by an appropriately trained, experienced and integrated workforce.
We are working with EAPC and Together for Short Lives to develop an international version of this Guide. We are keen to develop a version that is relevant internationally, including in low and middle-income countries, to help drive forward the development of children’s palliative care.We need your help to do this!
We would like to invite you to take part in a short survey (10-15 mins) to gather some feedback about the Guide and what would be most helpful in your countries to help with the development of children’s palliative care services.
Prof Julia Downing, ICPCN Chief Executive said
“We are excited to be working with our colleagues from Together for Short Lives and the EAPC children’s taskforce on this. We know that the Guide has been used in wide variety of countries, and look forward to receiving feedback on how you are using the Guide, and how we can adapt it for an international audience. Please do help us by completing the survey.”
We would welcome your responses by 28th September.