First of its kind project will advance neonatal palliative care in London

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The Trustees of The True Colours Trust have announced the appointment of Alexandra  Mancini as the UK’s first regional Lead Nurse in Neonatal Palliative Care at the Chelsea and Westminster NHS Foundation Trust . The Project is being co-funded by the Chelsea and Westminster NHS Foundation Trust  and The True Colours Trust.

The Project is the first of its kind. It will provide strategic, inspirational and professional senior nursing leadership in the development and delivery of multi-disciplinary neonatal palliative care services, initially across the five London networks with a view to a national roll-out over the Project’s five years. The Project is needed to ensure equity of care for babies and families across London, and in time across England.

The Project will facilitate expert and autonomous nursing care and the provision of support to neonates, families and unborn babies who require palliative and end of life care. The Lead Nurse will work in collaboration with a multi-disciplinary team, both in the hospital and in the community, in order to achieve the highest standards of optimal care for this group of babies and families. This will involve teaching and supporting the early identification of eligible babies, and ensuring they are being cared for in the most appropriate environment.

The Project will run for five years from March 2015 to March 2020, after which time funding will be found from statutory sources.

The Lead Nurse will transform the provision of palliative care for neonates, families and unborn children in London, and beyond. Chelsea and Westminster has been at the forefront of developments in neonatal palliative care in England, including publishing the country’s first evidence based guidelines for the management of palliative care on neonatal units in 2014; Alex Mancini has been integral to this work.  

Responding to the announcement of her appointment to this role, Alex Mancini said, “I’m delighted to have been appointed to this exciting and innovative regional role, the first in the country. I will be privileged to collaborate closely with paediatric palliative care and community services alongside neonatal staff, in ensuring babies and their families have access to consistently high quality palliative care, facilitating their choices and ensuring a seamless plan of care.”

Sandi Hillery, Head of Care at Shooting Star House said: “Shooting Star Chase are delighted with the appointment of Alex Mancini as Pan-London Lead Nurse in Neonatal Palliative Care. She has been working very closely with Shooting Star Chase for many years promoting Neonatal Palliative care in the hospice setting. We highly value her insight and vision and look forward to working more closely with Alex and supporting her in this new role across London.”  

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