Launch of Awareness Alliance to improve advocacy and access to palliative care for children

Categories: Leadership.

An alliance between the International Children’s Palliative Care Network (ICPCN) and Fondazione Maruzza, to be known as the “Awareness Alliance”, was launched on 19 November at the opening ceremony of the 2nd Congress on Paediatric Palliative Care – A Global Gathering taking place from 19 – 21 November 2014 at the Auditorium Antonianum in Central Rome. The over 430 delegates present at this worldwide gathering of paediatric palliative care practitioners heard of the vision and were introduced to the logo for the Awareness Alliance from the two leaders of the two charities.

Speaking at the launch, Sylvia Lefebvre D’Ovidio, Director of the Fondazione Maruzza said that it would be an honour to work together with ICPCN. She was very excited about the alliance as she felt that advocacy and communication would be very important to achieve the vision of the two organisations. 

Research has shown that an estimated 20 million children worldwide are affected by illnesses and conditions that threaten their lives or which will inevitably lead to death in childhood or early adulthood. Children’s palliative care services, providing flexible, holistic healthcare and support offers the most appropriate solutions to the multiple care needs of this vulnerable population and support to their families.

The ICPCN and the Fondazione Maruzza share the common vision of a world where palliative care is available to all children who need it. Through collaboration on specific projects, the Awareness Alliance aims to increase the public’s awareness of children’s palliative care and encourage their engagement in activities that promote the development of services worldwide. 

Commenting on the alliance, Joan Marston, ICPCN’s Chief Executive said, “As the ICPCN we believe that palliative care is the right of every child with a life-limiting condition. Fondazione Maruzza shares ICPCN’s belief and by working together, complementing each other’s strengths and building the global voice for children’s palliative care, we are a step further in reaching the more than 20 million children who need palliative care across the world.”

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