Sex, Intimacy and Living with Life-Shortening Conditions

Categories: Education.

Sex is one of the overlooked needs for people living with serious health-related suffering. A lot of emphasis may be on the medical well-being of the patient that we often forget that they have other human needs or desires. One of those needs is sex and intimacy. Patients may feel neglected, unwanted, or unattractive which can affect their self-esteem. On the other hand, caregivers may feel that medical well-being is of the utmost importance and assume or it may not even cross their minds that the patient may have these desires.

Until recent years, many young people with a life-limiting or life-threatening condition were not expected to live into adulthood. Now improvements in medicine and technology have changed all that for children with such conditions. Life expectancy has increased dramatically and as many young people with these conditions now live into their 30s and beyond, it’s not surprising that issues of sex, sexuality, and relationships have come to the fore.

Talking about sex is never easy, but what makes it particularly so for children with life-limiting or life-threatening conditions is that they were not usually expected to live into adulthood – but now do.

Sex, Intimacy and Living with Life-Shortening Conditions book is edited by Professor Sarah Earle and Dr Maddie Blackburn, both now at Nottingham Trent University. Among them is the International Children’s Palliative Care Network (ICPCN) Chief Executive Julia Downing and she contributed to the topic The regulation of sexual expression and joy: Complexities and contradictions. ICPCN’s Programmes Manager Lizzie Chambers wrote about Life-long learning about sex on an uncertain life course. The book has 12 chapters and it offers insights on policy and regulation in national and international landscapes in part one and in part two, delves deep into the experiences of sex, intimacy, and reproduction.

This multi-disciplinary and inclusive collection brings together theoretically informed and empirically focused research on sex, intimacy, and reproduction in relation to young people and adults with life-shortening conditions.

Get yourself a copy in ebook or Hardback. You can find the description, table of contents, and more information on how to access this book by clicking this LINK.

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