After more than 9 months from when the State Parliamentary Inquiry into Palliative Care opened in August 2012, the full report of recommendations has now been released by the Queensland State Government.
On Saturday 18 May 2013, the Chairman of the HCSC inquiry committee, Mr Trevor Ruthenburg (State MP for Kallangur) presented an overview of the report at the “Your Death, Your Choice” community forum hosted by Palliative Care Queensland on the Gold Coast. The forum included attendees from Palliative Care Queensland, Queensland Health and Queensland Kids as well as being attended by Dr Chris Davis (Assistant Health Minister) and Senator Claire Moore as political representatives.
“It was a milestone moment for Queensland families who will benefit from Hummingbird House being built in Queensland”, said Mr Paul Quilliam, Cofounder of Queensland Kids.
“A children’s hospice is the community’s response to palliative care for children and adolescents. The community has worked hard for this moment to be realised, where there is a formalised recommendation from State and Federal governments to work together to provide a children’s hospice for Queensland.”
“We can’t expect Queensland families requiring this specialist facility, to keep travelling to the nearest similar facility, which is Bear Cottage in NSW. Queensland Kids is well placed to deliver Hummingbird House with the support of our community and our State government”
“For Recommendation 3 in the report to be so clear and supportive of a facility like Hummingbird House to be built in Queensland is a great result for the families who provided submissions to the historic inquiry. The full recommendation reads as follows:
“The committee recommends that the Minister for Health work with the Commonwealth Minister for Health to provide a children’s hospice in Queensland, with strong links with the specialist Paediatric Palliative Care Service at the Children’s Health Hospital and Health Service. The hospice should provide end-of-life care, respite care for children and adolescents with a life-limiting condition, information and advice on accessing services and bereavement counselling and support for families, including siblings.”
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