The 46th issue of the ChiPPS E-Journal looks at symptom management with children

The E-Journal is produced by ChiPPS (the Children’s Project on Palliative/Hospice Services), a programme of the National Hospice and Palliative Care Organization and, in particular, by NHPCO’s E-Journal Work Group, chaired by Christy Torkildson. 

Articles in this issue include:

• ‘Moments of Grace’ in Dying, Death, & Bereavement  by Ann Fitzsimons, BS, MBA which offers three examples from her own life that might provide some inspiration as to what and how ‘Moments of Grace’ can happen when someone is open to what’s possible during and after someone’s death. 

• It’s never a bad idea to make the referral by Genny Jessee, the mother of a child born with an undiagnosed neurological disorder who developed multiple complications. 

• Managing nausea and vomiting in Children 

• Alternative Routes of medication administration in children  by Melissa Hunt, PharmD which gives useful guidance to professionals who provide paediatric palliative care.

• Fatigue in children with serious illness by Jori F. Bogetz, MD, and Margaret Root, MSN, RN, CPNPAC, CHPPN which explores the multifactorial nature of fatigue in seriously ill children, assessment strategies, and effective treatment options. 

• Understanding silence: Symptom management in children who are severely delayed and/or diagnosed with disorders of consciousness by  Vanessa Andres, MA, CCLS, ATR-BC, LCAT, CEIM, RPT suggesting ways that professionals and family members can help such children. 

• Existential pain in children and teens by Rabbi Naomi Kalish, MD, ACPE, NCC, PhD focusing on approaching such youngsters and their pain within the context of relationship. 

• Using Reiki therapy for symptom management in children receiving palliative or hospice care by Susan Thrane, PhD, MSN, RN who states that there is a growing body of evidence showing positive results for the use of Reiki therapy for symptom management in both adults and children. 
• Palliative sedation for intractable suffering at end of life in children by Suzanne S. Toce, MD describing assessments and criteria involved in palliative sedation.
• Handbooks for Pediatric Pain and Symptom Management by Suzanne S. Toce, MD presenting several tools that can be sued by those with little training or infrequent exposure to paediatric palliative care patients managing basic symptoms as well as adult providers caring for a child
  

This E-Journal can be downloaded here. 

Archived issues of this publication are available at www.nhpco.org/pediatrics.

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