Courtesy of the International Association for Hospice and Palliative Care (IAHPC)
The growing prevalence, uncertain (life‐threatening) prognosis and high symptom burden of non-communicable diseases make patient and public involvement and engagement (PPIE) relevant in palliative care research. PPIE can ensure that the rapid development of medical and technological opportunities for diagnostics, treatment, and care are aligned with the needs and priorities of a growing population affected by life-threatening illnesses. Years of initiatives in the UK and the United States have made PPIE a familiar aspect of cancer research, especially due to formal training requirements and the presence of patient advocates/representatives on review panels since the 1990s.
Therefore, PPIE in palliative care research is a field particularly suitable to study and learn from, both in terms of how PPIE is practised and determining its outcomes and impact.
Please find the article in its entirety here Featured Story – International Association for Hospice & Palliative Care (hospicecare.com)