REMINDER – Call for palliative care professionals across the world to participate in a new survey study called PRESENCE ‘Palliative care professionals’ Reactions, Experiences, and Self-Awareness of Emotions iN Clinical Encounters’
Emotions are at the heart of palliative care, yet their role as explicit resources of care provision remains understudied. The international study PRESENCE invites palliative care professionals (e.g. nurses, physicians, physiotherapists, psychologists, and social workers) working in any settings and at all career stages to share their experiences on the place of emotions in palliative care provision.
The survey is available in 7 languages: Dutch, English, French, German, Italian, Portuguese, and Spanish, and takes about 30 minutes to complete. Participation is voluntary and anonymous.
More details about the survey can be found below or on the research project’s webpage. To access the online survey directly, please use the following link: https://redcap.link/919khuzw
Why are we doing this study?
Palliative care professionals are regularly exposed to emotionally charged situations. While emotions are an intrinsic part of their interactions with patients and relatives, emotions as explicit resources for the improvement of clinician-patient relationship have remained understudied.
In the PRESENCE study, we are interested in the full range of ways emotions are perceived, experienced, used, shared, or managed during palliative care consultations.
Who can participate?
Health care professionals working in palliative care in any country, including:
- nurses, physicians, physiotherapists, psychologists, and social workers
- working in different palliative care settings
- working full-time, or part-time including those combining work in palliative and non-palliative care settings
- working with adult and/or paediatric palliative care patients
- with different levels of palliative care experience.
How can you participate?
Participation entails completion of an online survey that takes about 30 minutes. The survey contains questions on your background, as well as experiences, perceptions, attitudes, current practice, and support you feel is needed regarding emotions in clinical care.
Participation is completely voluntary, and the data provided will be treated confidentially and anonymously.
The survey is available in 7 languages: Dutch, English, French, German, Italian, Portuguese, and Spanish.
Ethics?
The study was exempted from review by the Cantonal Ethics Committee, Bern (REF: req-2025-00477).
What do we want to achieve?
Your insights will help us understand the place of professionals’ own emotions in the practice of palliative care, as well as potential support needed to strengthen emotion-related skills in healthcare.
From the Core Research Team, thank you for your interest in the study!
Prof. Sofia Zambrano, Prof. Johan Bilsen, Prof. Stephen Connor, and Katrien Moens
FOR QUESTIONS: Please reach out to the coordinator of the survey: Katrien.Moens@unibe.ch
This project is financed by the Swiss National Science Foundation: grant number PCEFP1-194177.
Leave a Reply