The report emphasises the need for children living with life-limiting or life-threatening conditions and their families to access the expertise that hospice and palliative care professionals can provide throughout the course of a serious illness.
The report includes:
- an overview of Concurrent Care for Children provision in the Affordable Care Act (ACA)
- identification of the barriers for paediatric palliative care that are not addressed even with the provision for concurrent care in ACA
- key strategic opportunities for hospice and palliative care providers to expand the care continuum for children living with life-limiting or life-threatening conditions and their families.
This new report joins other materials created by the NHPCO, such as the Concurrent Care for Children Requirement: Implementation Toolkit and a series of seven online learning modules on Paediatric Palliative Hospice Care that will soon expand to a series of 10 modules. The NHPCO encourages the formation of state-wide paediatric palliative and hospice care advocacy coalitions to work towards improved options of care.
More details about the Continuum Briefing can be found on the International children’s edition of ehospice.
Learn more about the Mary J. Labyak Institute for Innovation at the National Center for Care at the End of Life by visiting the organization’s page on the NHPCO website.