David writes that he is thinking of all South Africans as they mourn the passing of Nelson Mandela, a remarkable role model for leaders everywhere. He comments that it is exciting for South Africans to be a part of a nation born out of the vision and leadership of such a person and those who worked closely with him; what a challenge to maintain his ideals and values.
The new film Mandela: Long walk to Freedom had its first screening last night in London and the news was broken to the audience by the producer at its end. It is almost as if his story is being re-born, hopefully for a new generation, even as we lay to rest his physical being. May the story be as strong – even stronger – than the person who gave birth to it.
The African Palliative Care Association’s Executive Director, Dr Emmanuel Luyirika, looks back on Mandela’s life and the lasting impact it has had on healthcare in South Africa.
As we face the reality that Madiba is dead, it is worth noting the several standards that he stood for. Mandela stood for life in its fullness and embraced peoples’ freedoms and rights. From his earlier court appearance in 1964 before an apartheid judge and court room Mandela famously said,
“During my lifetime I have dedicated myself to this struggle of the African people. I have fought against white domination, and I have fought against black domination. I have cherished the ideal of a democratic and free society in which all persons live together in harmony and with equal opportunities. It is an ideal which I hope to live for and to see realized. But my Lord, if needs be, it is an ideal for which I am prepared to die.”
The 27 years that followed, Mandela languished in apartheid prisons but with his dignity because he stood for the rights of others and was ready to face jail rather than appease the powers that be. His jail time did not extinguish the hopes of many but instead created further hope among the people of South Africa, the rest of Africa and indeed all people of good will.
When he emerged from prison, Mandela’s agenda was clear for he wanted a society where all the perpetrators of apartheid would be forgiven and build a rainbow nation irrespective of colour or creed.
As South Africa negotiated the post-apartheid political set up and development of the new constitution for a free and democratic South Africa with the likes of Cyril Ramaphosa and Roelf Meyer as key agents on both sides, Mandela’s ideals extended to human rights. He oversaw the development one of the most liberal and comprehensive constitutions in Africa and indeed the modern world with the rights of people to health entrenched in a very magnanimous bill of rights. On health, the bill of rights enshrined in the South African Constitution chapter 2 section 27 states that:
- Everyone has the right to have access to
- health care services, including reproductive health care;
- sufficient food and water; and
- social security, including, if they are unable to support themselves and their dependants, appropriate social assistance.
- The state must take reasonable legislative and other measures, within its available resources, to achieve the progressive realisation of each of these rights.
- No one may be refused emergency medical treatment.”
The bill of rights further observes that the “a child’s best interests are of paramount importance in every matter concerning the child” and in one of his famous quotes Mandela said: “There can be no keener revelation of a society’s soul than the way in which it treats its children.”
Under his leadership and the then Minister of Health Hon Dr Nkosazana- Dlamini Zuma (now President of The African Union Commission) access to medicines and health services was improved for the black majority and supervised the development of one of the first patients’ rights charter on the African continent which summarises the rights and responsibilities of patients.
According to this charter the patient has a right to:
- A healthy and safe environment
- Access to safe healthcare
- Emergency care in life-threatening situations
- Confidentiality and privacy
- Be treated with courtesy and consideration by all staff
- Be informed about his/her illness/condition and treatment, so as to be in a position to give informed consent
- Exercise choice in healthcare services
- Participate in decision-making that affects his/her health
- Be referred for a second opinion
- Continuity of care
- Complain about health services
- Be treated by a named healthcare provider
- Refuse treatment or information about his/her illness
In addition, Madiba identified with the suffering caused by HIV, poverty and discrimination.
For those of us in health care and specifically palliative care, Mandela has left a legacy that we can build on to ensure that we care for all especially at their point of most need. Let us not weep or mourn but celebrate the African giant who symbolises life, justice and fairness.
Let us embrace his legacy as we look out for the interests of the most vulnerable in our society and be available to share our lives for their sake.
Fair thee well Mandela!!
This article was originally published on the APCA website.