World hospice and palliative care news roundup – 2 February 2016

Categories: In The Media.

Access to Palliative Care – letter to editor

US – New York Times

 It will take major policy changes to accomplish the writers’ laudable goal of “making access to palliative care the default, instead of just an option, for all patients with advanced and incurable cancer” so people can die at home, not in hospitals.

Uganda: Teenager in Agony Due to Rare Cancer

Uganda – AllAfrica

BCF is an organisation that offers psychosocial support services to children living with cancer. It has two Homes; in Kampala and Gulu.

New courses focussing on end of life care launched by university, hospice and health trust

UK – The Bolton News

The Bolton Palliative Education Alliance is a partnership between The University of Bolton, Bolton Hospice and Bolton NHS Trust to deliver new courses in palliative and end-of-life care.

Front-line caregivers discuss dying

US – Green Valley News

Going through an illness involves a lot of changes — pain, fear, lack of control, loss of independence and the need to ask for help. It is often particularly difficult for anyone with an illness facing the end of life.

Scottish government announces review of how medicines are assessed for NHS use

UK – The Pharmaceutical Journal

The Scottish government has announced an independent review into the way that new drugs are assessed for use in the NHS that will report back to ministers by mid 2016.

St Margaret’s Hospice patient Camilla Wilson talks conflicting emotions

UK – Western Gazette

In her latest blog post, Camilla talks about the contradictory emotions she is experiencing as her illness progresses. She highlights the need to raise money to help older people facing life-limiting diseases, and suggests ways to combat loneliness and create a sense of community between older people.

Calum Ferguson: MND sufferers should live with dignity

UK – The Scotsman

I was diagnosed with MND in March 2010. As a 46-year-old with three young children this was a devastating piece of news, particularly given the poor prognosis. However, I decided from the outset that I was not going to give in easily.

Rage against the dying of the light

US – The Medium

When it comes to mental health, is the end goal comfort or strength?

New film highlights the good living that can occur in lead-up to death

ehospice Australia

Melbourne students offer profound insights into the opportunity for living that can occur in the lead-up to death, in a film launched today.

“We work together to make it less bad”: A day-in-the-life of a hospice family support team manager

ehospice UK

Julie Wells is an experienced counsellor and manages the family support team at St Cuthbert’s Hospice in Durham. Here she tells us about her typical day at work.