US – MD News
A common misconception is that dying is a painless process with little to no anxiety. Society avoids the topic of death, and many people are unaware of the pain and anxiety that many patients undergo when end of life is near.
UK – National Institute for Health and Care Excellence
NICE has today published its guideline on the assessment and management of motor neurone disease (MND). The guideline calls for a range of health and social care professionals to be involved at every stage in the care of people with the condition so that decisions about the person’s care can be informed by and tailored to their individual needs and circumstances.
Singapore – Channel News Asia
The parents of a little girl born with the most severe form of spinal muscular atrophy share their tale ahead of Rare Disease Day.
Indonesia – The Jakarta Post
Amid controversy, the city administration is continuing its plan to build a state-of-the-art cancer hospital and a 40-story palliative care center on a troubled plot of land adjacent to the Sumber Waras Hospital in Grogol, West Jakarta.
South Africa – Little Fighters Cancer Trust
Following on yesterday’s post re Childhood Cancer in Africa, in which we discussed Paediatric Supportive Care and Paediatric Palliative Care (PPC) for Children with Cancer in Africa, including in South Africa, here is some more information regarding PPC.
The Irish Hospice Foundation (IHF) is calling for a more cohesive approach to end of life care across the whole health service following RTÉ’s The Big Picture health special – which revealed the lack of privacy for patients dying in hospital.
Sarah Russell talks to Laura Middleton-Green from the University of Bradford about the recently published evaluation of Gold Line, a 24/7 nurse-led tele-consultation service for people at the end of life, and the future of such interventions.