World hospice and palliative care news roundup – 24 February 2016

Categories: In The Media.

Compounding Pharmacists: Partners for End-of-Life Care

US – MD News

A common misconception is that dying is a painless process with little to no anxiety. Society avoids the topic of death, and many people are unaware of the pain and anxiety that many patients undergo when end of life is near.

NICE publishes new guideline on the assessment and management of motor neurone disease

UK – National Institute for Health and Care Excellence

NICE has today published its guideline on the assessment and management of motor neurone disease (MND). The guideline calls for a range of health and social care professionals to be involved at every stage in the care of people with the condition so that decisions about the person’s care can be informed by and tailored to their individual needs and circumstances.

Every day is a fight for toddler with ‘floppy baby syndrome’

Singapore – Channel News Asia

The parents of a little girl born with the most severe form of spinal muscular atrophy share their tale ahead of Rare Disease Day.

City still dreams of deluxe healthcare centers on troubled land

Indonesia – The Jakarta Post

Amid controversy, the city administration is continuing its plan to build a state-of-the-art cancer hospital and a 40-story palliative care center on a troubled plot of land adjacent to the Sumber Waras Hospital in Grogol, West Jakarta.

The Importance of Palliative Care for Children with Cancer

South Africa – Little Fighters Cancer Trust

Following on yesterday’s post re Childhood Cancer in Africa, in which we discussed Paediatric Supportive Care and Paediatric Palliative Care (PPC) for Children with Cancer in Africa, including in South Africa, here is some more information regarding PPC.

RTÉ’s health special highlights challenges to ensure dignity at end of life

ehospice Ireland

The Irish Hospice Foundation (IHF) is calling for a more cohesive approach to end of life care across the whole health service following RTÉ’s The Big Picture health special – which revealed the lack of privacy for patients dying in hospital.

Research reflections: telephone and video consultations at the end of life

ehospice UK

Sarah Russell talks to Laura Middleton-Green from the University of Bradford about the recently published evaluation of Gold Line, a 24/7 nurse-led tele-consultation service for people at the end of life, and the future of such interventions.

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