World hospice and palliative care news roundup – 24 June 2016

Categories: In The Media.

Gawande: Good palliative care blocked by quality measures, lack of communication

US – McKnight’s

The quality measures currently in place in skilled nursing facilities and hospice settings are too focused on safety and health to promote effective palliative care, physician Atul Gawande, M.D., MPH, told lawmakers on Thursday.

Finding respectful solutions to ethical issues on medically assisted dying

Canada – Reigina Leader-Post

The recently passed Bill C-14 regarding medically assisted dying has raised many questions for Canadians to carefully consider moving forward. On June 21, the most diverse religious grouping ever to jointly advocate on such an issue in our province presented a joint statement signed by a host of Jewish, Muslim and Christian leaders to the government and the official opposition at the provincial legislature.

Risk of under-treatment in end-of-life dementia

Ireland – Irish Medical Times

The way the plethora of pain assessment tools now available are used in patients dying of dementia has not been sufficiently explored, a conference in Dublin has heard.

Parental challenge on assisted dying for children expected

Canada – CBC News

Physician-assisted dying as it pertains to children will be one of the topics discussed at the Canadian Paediatric Society conference being held this week in Charlottetown.

Point of view: first Belarusian children’s hospice is rather tolerated than welcomed

Belarus – Eurobelarus

On 16 June the new building of the Belarusian Children’s Hospice (BCH) will open its doors in Barauliany, just 20 minutes outside of Minsk. First of a kind in the country, it has been helping terminally ill children and their families since 1994. They actually pioneered both: hospice and palliative care.

Familiarity key for end-of life care with dementia

Australia – Australian Ageing Agenda

Familiarity is important in palliative care for people with dementia and as an individual’s dementia advances, change should be avoided and stimuli reduced, says an expert.

Narrating Medicine: When Doctors Forget To Feel

US – wbur

I still do not know death. As a physician, I am taught to identify it, to delay it, but when confronted by it, I struggle with how to process it. This unrest becomes most apparent when I speak with a patient and their family about end-of-life care. “Your mother is dying,” I have told a son. “How do you feel about focusing her care on comfort and dignity?”

Students gain rich knowledge from placement at Umodzi

ehospice International Children’s

Students from Uganda and the Netherlands were placed at Umodzi Children’s Palliative Care for one month to gain practical experience in children’s palliative care.

Palliative care is everyone’s business

ehospice Kenya

Do you know how many patients in Kenya live with and die in excruciating pain? Many!

Education is Key to Empowering

ehospice South Africa

As we conclude our #HospiceVisits at St Francis Hospice, we meet a very unique individual who shares her unexpected journey with us.

Making an outstanding contribution to end of life care for people with learning disabilities

ehospice UK

As nominations open for The Linda McEnhill Award 2016, we find out more about last year’s winner and how the award fits into the work of the Palliative Care for People with Learning Disabilities (PCPLD) Network to share best practice.

NHPCO shines a spotlight on end-of-life care at Congressional event on Capitol Hill

ehospice USA

NHPCO hosted a Congressional screening and panel discussion of the PBS/Frontline documentary, “Being Mortal,” based on Dr. Atul Gawande’s best-selling book of the same name. The event featured five Congressional leaders, Dr. Gawande and country-music’s Rory Feek.