World hospice and palliative care news roundup – 29 April 2015

Categories: In The Media.

Doctors improve newborn care with genetic testing

US News & World Report

Early results from a pilot program funded by the National Institutes of Health show that fast-acting genetic testing can influence the way doctors care for critically ill infants – even if the diagnosis means moving them to end of life care and support.

Dying patients’ choices not always aligned to caregivers’

US – Oncology Nurse Advisor

An illuminating study compares the willingness of patients with stage IV cancer and their caregivers to pay to extend their lives by 1 year against that of other end of life improvements.

We’re sick of ‘broken’ healthcare

Canada – London Free Press

Most Canadians expect the healthcare system to fail them when they need it most, suggests a new Nanos poll exclusive to Postmedia Network.

New report highlights the barriers to care for people with dementia in Northern Ireland

UK – Marie Curie blog

‘Living and dying with dementia in Northern Ireland’, a new report published by Marie Curie and Alzheimer’s Society, identifies the barriers that prevent many people living with dementia in Northern Ireland from accessing the care they need.

Iris House opens first special needs hospice in South Africa

Iris House

After four months of intensive repair work by volunteers, staff and families of Iris House and the amazing support of professional contractors, Iris House proudly opened their phase one Respite Day Care service on 14 of April 2015.

Hospice Savannah patient receives Congressional Gold Medal

ehospice USA

Amelia R. Jones, a 95 year-old woman receiving hospice care, was recently awarded a Congressional Gold Medal recognizing her service and dedication to the nation.

Meet Mandisa: a woman of perseverance

ehospice South Africa

A story of true love, dedication and compassion shown by a woman not willing to give up when faced with adversity.

Colouring outside the lines

ehospice UK

Dr Ros Taylor considers what we can learn from children, marathon runners and change gurus, as she reflects on a busy week as Hospice UK’s National Director for Hospice Care.

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