Based at the Chelsea and Westminster NHS Foundation Trust, the project is being co-funded by this Trust and The True Colours Trust.
The project will provide strategic, inspirational and professional senior nursing leadership in the development and delivery of multi-disciplinary neonatal palliative care services, initially across the five London networks with a view to a national roll-out.
As part of a new project, Alex will work in collaboration with a multi-disciplinary team, both in the hospital and in the community, in order to achieve the highest standards of optimal care for this group of babies and families. This will involve teaching and supporting the early identification of eligible babies, and ensuring they are being cared for in the most appropriate environment.
The project has funding for five years from March 2015 to March 2020, after which time funding will be found from statutory sources.
Alex commented: “I’m delighted to have been appointed to this exciting and innovative regional role, the first in the country. I will be privileged to collaborate closely with paediatric palliative care and community services alongside neonatal staff, in ensuring babies and their families have access to consistently high quality palliative care, facilitating their choices and ensuring a seamless plan of care.”
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