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….from the Hospice Alliance Northern Ireland press release:
The four hospice charities that make up HANI – Evora Hospice Care, Foyle Hospice, Marie Curie Northern Ireland, and Northern Ireland Hospice (including Northern Ireland Children’s Hospice) – were joined by healthcare professionals, policymakers, palliative care patients and their families at Parliament Buildings, Stormont, for the launch of With The End In Mind: Delivering equitable, quality and sustainable hospice care for Northern Ireland.
The report warns that maintaining the status quo is no longer an option, with access to care varying according to geography, diagnosis, service availability and how people enter the health and social care system.
HANI is calling for Government, commissioners and the wider Health and Social Care system to act quickly to address these inequalities and ensure access is based on need – not postcode or circumstance.
Economic analysis commissioned by HANI estimates that up to 19,000 people could benefit from palliative care each year by 2036, almost 17% more than in 2024. This comes against existing unmet need, with UK-wide research indicating that around one in three people who die have unmet palliative care needs.
Exerts from the Executive Summary:
The Hospice Alliance Northern Ireland has developed this report to set out a shared vision for the future of hospice care. Drawing on the collective experience of Northern Ireland’s four hospice providers, it highlights the difference hospice care makes, examines the challenges facing the sector and presents a practical framework for delivering more equitable, high-quality and sustainable services in the years ahead. Our vision is simple: everyone in Northern Ireland who could benefit from palliative care can access the right support, at the right time, in the right place and in a way that reflects what matters most to them and their families.
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Hospice care is not an optional addition to Northern Ireland’s Health and Social Care system. It is a core part of the care people and families rely upon at some of the most vulnerable points in their lives. Investment in hospice care should therefore be viewed as investment in essential health service capacity, improving outcomes for patients and families while supporting a more effective and sustainable Health and Social Care system.
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