No Barriers Here is a unique and innovative approach to advance care planning for people with learning disabilities and a collaboration between The Mary Stevens Hospice, Dudley Voices for Choice, and Art Psychotherapist, Jed Jerwood.
No Barriers Here was co-produced by people with learning disabilities. It explores the use of art-making to create and support conversations about death and dying – discovering what matters most to people at the end of life.
Participants are gently guided through four distinctive workshops where they share their narratives using arts-based methods such as collage, textiles and weaving. This helps them to shape creative, distinctive and truly personalised advance care plans.
We hope that this film can be used to challenge any misconceptions around talking about death and dying with people with learning disabilities and support the idea that using arts approaches in palliative care can shape rich conversations within our communities and challenge inequalities underserved populations experience.
Some quotes from the workshops:
“Its great how people in the group shared things and I felt safe to do that.”
“If you’re cynical about what art-making adds to health-based discussion, this project will challenge that cynicism.”
“Some of us may need round the clock care at some point in our life and it’s essential that a support and care system is put in place”
“Really enjoyed taking part in this! Thinking about what matters in our lives makes us all truly equal. Thank you.”
No Barriers Here was awarded a grant from Hospice UK’s ‘Widening Access’ fund, provided by The Masonic Charitable Foundation Trust and additional monies from NHS Black Country and West Birmingham CCG.
“It has been a privilege to work in co-production on this project with people with learning disabilities.”