New polling out today reveals that around 20 million / over a third (38 per cent) adults agree they do not know what end of life support and services are currently available in the UK, with half (50 per cent) admitting they have given little thought to planning ahead if they were to receive a terminal diagnosis.
- 50 per cent have given no thought to planning if a terminal diagnosis was received
- The Rough Guide to the End of Life created and released as urgent free guide to end of life care
- Leading end of life charity Marie Curie highlights it supports people with any illness they are likely to die from, not only advanced cancer
In response, Marie Curie, the UK’s leading end of life charity with a 75-year history, has partnered with Rough Guides to create the first ever UK ‘guidebook’ to end of life.
The Rough Guide to the End of Life aims to help people navigate the end of life with guidance and information from Marie Curie.
The charity aims to double the number of people it provides direct expert end of life care to by 2028 and highlight its services not only support those with advanced cancer, but any illness they are likely to die from including Alzheimer’s (and other forms of dementia), heart, liver, kidney and lung disease, motor neurone disease, and Parkinson’s.
Despite end of life being inevitable for all, 40 per cent say they would not know how to access the information or services required to best support the needs of someone nearing their end of life. While two thirds (64 per cent) state they would expect the NHS to refer them to all available resources if they were given a terminal diagnosis, however every five minutes someone dies in the UK without the care they need according to Marie Curie.
There is further confusion around where people can receive end of life care with 43 per cent of people surveyed not knowing care can be received from home. In fact, Marie Curie provides end of life care to people in their own homes.
Available as a free downloadable guide at www.mariecurie.org.uk/withyou, The Rough Guide to the End of Life intends to help with ‘planning ahead’, offering tips on making a Will and sharing your preferences for your funeral to what to do with your social media and online accounts.
It also provides supportive guidance on how to cope with feelings if you or a loved one are at the end of life stage, alongside guidance on bereavement and grief. The free guide also features relevant resources and organisations like Marie Curie who can provide support, and where and how to access end of life care when it is needed.
Maria Novell Chief Innovation, Income and Engagement Officer at Marie Curie says:
“It’s heart-breaking when we hear that someone didn’t know Marie Curie could help them or their loved one with the end of life. Wherever you are and whatever the illness, Marie Curie is with you to the end and the leading end of life charity.
The Rough Guide to the End of Life is a physical demonstration of the support and guidance we provide for many people and families. We hope it becomes an invaluable family resource that shows people who are affected by any terminal illness that we’re there for them.
By being better prepared and knowing how to access the right care and support services, whether for you or a loved one, will help improve a person’s chance of having a good end of life experience.”
Kate Drynan, Senior Editor at Rough Guides says: “Our guides have supported millions of travellers over the decades, but we could not think of a more important journey than helping people to navigate their final chapter of life. We are proud to have partnered with Marie Curie on this important campaign and hope the first The Rough Guide to the End of Life gives support to many.”
To download the first The Rough Guide to the End of Life for free, visit the Marie Curie website www.mariecurie.org.uk/withyou
For more information about Marie Curie please visit: mariecurie.org.uk.
Polling research completed by Opinion Matters among a sample of 2001 UK adults – nationally representative by age, gender and region (16+). The data was collected between 15.09.23 – 18.09.23. Opinion Matters abides by and employs members of the Market Research Society and follows the MRS code of conduct which is based on the ESOMAR principles and are members of The British Polling Council.
About Marie Curie
- Marie Curie is the UK’s leading end of life charity.
- The charity provides expert end of life care for people with any illness they are likely to die from, and support for their family and friends, in our hospices and where they live. It is the largest charity funder of palliative and end of life care research in the UK, and campaigns to ensure everyone has a good end of life experience. Whatever the illness, we’re with you to the end.
- If you’re living with a terminal illness or been affected by dying, death and bereavement, Marie Curie can help. Visit www.mariecurie.org.uk or call the free Marie Curie Support Line on 0800 090 2309.
Whatever the illness, wherever you are, Marie Curie is with you to the end.