Basic Symptom Control in Paediatric Palliative Care, developed and edited by Dr Satbir Singh Jassal, a GP and medical director at Rainbows Children’s Hospice, aims to provide doctors and nursing staff with an “all in one” reference tool for symptom management and children’s palliative care medicines.
The guide is set out as an A-Z of symptoms that could occur when caring for a child with palliative care needs and how to approach them.
It also includes a comprehensive prescribing formulary, adapted from the third edition of the Association of Paediatric Palliative Medicine’s master formulary, to support those prescribing in children’s palliative medicine.
The new edition – which benefits from contributions and peer reviews from 29 leading paediatric and palliative care specialists – features a new chapter on end of life and major rewrites on pain and gastrostomy.
“Basic Symptom Control in Paediatric Palliative Care has been designed to provide both practical support and hands-on clinical information in the acute setting,” explains Dr Jassal.
“It’s been written to allow doctors (both GPs and paediatricians) and nursing staff in specialised units and in the community, an understanding of the basis of symptom control in paediatric palliative care.
“This topic can instil tremendous anxiety in professional people who might only have to look after one or two children with life-limiting disorders in their entire working life.”
A digital version of the 9.5 edition of the manual, which has been jointly published by Together for Short Lives and The Rainbows Hospice for Children and Young Adults, is available to access for free at http://ppcscm.co.uk/
You can read more about the manual in a blog by Dr Jassal on the Together for Short Lives website.