Children with Medical Complexities, Part One (Issue #36; August 2014); this free e-journal is published by NHPCO’s Children’s Project on Palliative/Hospice Services and is available online. This new edition is a collection of articles focused on caring for children with medical complexities. This is the first of two editions looking at this important topic.
As noted in the introduction of one of the articles, “Medically complex and fragile children with progressive diseases present unique and complex challenges for their medical management that require coordination, flexibility, and consistent community…between the family, hospice and medical teams.”
Alison Kirkland, a mother who wrote the article “After the Unexpected Happens,” shares her personal insight: “Despite the heartache and stress, parenting a child with medical complexities can be one of the most joyful and rewarding experiences of your life.”
Additional articles in this issue include:
• Caring in Uncertainty: Children and Families with Genetic Conditions
• The Partnership between Palliative Medicine and Children with Medical Complexity
• Complex Care Coordination
• Pediatric Palliative Care and Pediatric Surgery: Common Issues
• Staff Bereavement in Palliative Pediatric Care
Download the PDF of this edition: http://www.nhpco.org/sites/default/files/public/ChiPPS/ChiPPS_ejournal_Issue-36.pdf.
Visit the archive page of the ChiPPS e-journal/e-newsletter page on the NHPCO website for access to previous editions of this publication.