Which session’s did you attend that addressed children’s palliative care?
I attended all the sessions concerning children’s palliative care. Joan Marston’s plenary session was my favourite, I learnt a whole lot. I also attended Michelle Mering’s session about perinatal loss as well as Busi Nkosi’s session where she discussed euthanasia.
What did you learn about children’s palliative care? What stood out the most?
I found the discussion around euthanasia quite interesting. I learnt that most of the time the child does not have a voice, as decisions are often left to the doctors or families. The perinatal sessions were incredibly informative to me as I am currently reading about perinatal palliative care availability in Pretoria as a means of support for the parents with babies who have life-limiting or life-threatening conditions.
Do you offer children’s palliative care services at your hospice? If so, what do you provide?
Yes, we do offer children’s palliative care services at Sungardens Hospice, but only a very small percentage of our patients are children.
Any other thoughts on children’s palliative care you would like to share?
I feel that caring for these kids is definitely one of the most difficult aspects of palliative care. It is heart-breaking.
Are you aware of ICPCN’s e-learning courses? Is it something you would be interested in?
I wasn’t aware of your e-learning course until today. I’ve got an e-learning information brochure and it is definitely something I would love to complete.
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