From a Parent’s Perspective

Categories: Care.

We coped surprisingly well in those early years although we always felt isolated living in a small town and not knowing any other parents out there “like us”. Sure, there seemed to be no shortage of parents with children with special needs but once we were referred to Roger’s House, we felt that we
were in a league of our own. Having a child with mild cerebral palsy differs greatly from having a child with medical fragility and a short life expectancy. After sharing a room at CHEO with another family who had a child remarkably similar to our own, I attended my first parent support group in November 2010 at the urging of our new friends. I didn’t expect to get much out of it as I considered myself to be highly resilient and I wasn’t in the market for a ‘touchy-feely’ support group. To my surprise, it was not what I had imagined and has become a “must do” on my endless list of monthly commitments. The parent group is a safe environment where you can say, feel and be whatever it is you need while in the gentle and nurturing space of a group of non-judgemental people. It truly is the ONLY place where I feel completely and fully understood and supported. If you have hesitated to come out, I encourage YOU to give it a try and before you know it you, too, will be a regular surrounded by friends.


To find out more about Julie Keon, please visit her website

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