ehospice and PACED are pleased to announce an emerging partnership around our shared desire to promote awareness of all aspects of Palliative Care.
PACED was formed in 2017 so that more people in Central Asia, Caucasus, Eastern Europe and the Baltic states receive high quality palliative care. While education is at the heart of PACED’s work, they are involved in a range of activities to help ensure palliative care reaches all those who need it.
For further information about PACED go to https://paced.org.uk/aboutpaced
To begin with the ehospice Editorial edition will publish their monthly Digests of Palliative Care News. We begin below with a summary of their 2023 digests
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Dear colleagues!
In 2023 we started to collect and share the digest of palliative care professional news. In future we plan to test new release formats, to expand the range of topics and sections. Dear professionals, we hope that you will find plenty of information useful for development of your skills and knowledge in the digests.
Last year we selected 35 materials from all the news covering everything interesting in palliative care. For your convenience, we have organised them into sections:
Palliative care education
- A new approach to education at St Christopher’s CARE: learning through personal storie
- “Elegant expert care”: a new specialization in neurology – neuropalliative care
- Death literacy among healthcare professionals is dismal
- “Palliative care education in undergraduate nursing programs still requires refinement”. What can be improved?
- What did the assessment of the educational needs of nurses working with terminally ill newborns reveal?
End of life
- A record number of euthanasia cases was recorded in the Netherlands in 2022.
- “Hospice care becomes a sanctuary where patients can craft their final chapters”
- Patient story: a good death in hospice after terrible brain cancer
- Could palliative sedation be considered an unnamed euthanasia? Survey among oncology specialists
- Modern technologies aid in predicting the lifespan of hospice patients
- Doctors’ emotional decisions regarding treatment tactics do not lead to relief in the end-of-life period for patients
- Spiritual support at the end of life
The role of the nurse in palliative care
- The pivotal role of nursing staff – why this is important in primary palliative care
- How a personal story transforms a career: a nurse’s tale of encountering palliative care for the first time when her father faced cancer diagnosis
- “Hospice Nurse Julie” – a YouTube channel that discusses death and dying
Interesting research
- Palliative care at home or in a hospital setting? A comparison of survival times of advanced cancer patients
- Why do non-oncological palliative patients have a 1.24 times higher risk of in-hospital mortality than oncology patients?
- Family members of oncology patients undergoing treatment and of hospice patients: what are the differences in their perception of hospice care?
Palliative care system
- The optimal model of home hospice care in providing palliative support – what does it look like? Insights from England
- Which countries have the best and worst palliative care systems?
- Palliative care for individuals with intellectual disabilities: what should it be like?
- Are paediatric hospices needed as a form of palliative care for children?
- Misconceptions about palliative care hinder patients and their relatives
- Deprescribing and Palliative Care
- Patients and caregivers. How is mutual support established?
New and unusual forms of work
- Would you like to talk to Cicely Saunders, who created the first modern hospice? Artificial Intelligence makes it possible.
- A new specialty – the death doula. How does a doula help people prepare for the end of life?
- Dogs in palliative and hospice care – why patients seek animal companionship
- “Death Cafe” is a space where people can gather and discuss life, death, and other taboo topics
- Acupuncture and massage reduce pain intensity among patients with advanced cancer
Treatment and care
- Palliative care at early stages of care for patients with severe respiratory diseases
- Case report: leptomeningeal carcinomatosis and palliative care
Useful materials
- The extensive list of international conferences is helpful for palliative care professionals. Planning professional development in 2023 and 2024
- Collection of the Top-15 palliative care podcasts
- The Sunflower – Palliative care podcasts
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