Lucy Watts was recently appointed as a Global Youth Ambassador for the International Children’s Palliative Care Network (ICPCN) and, despite many restrictions due to her poor health, is making an enormous impact through her writing and public speaking. Lucy lives with Ehlers-Danlos Syndrome, which has caused Autonomic Neuropathy and Intestinal Failure amongst other secondary conditions.
In this, her latest blog, Lucy takes a look at the ICPCN NOW campaign and its objectives. She writes,
With little-to-no children’s palliative/hospice support across many countries of the world, millions of children are going without palliative care. Care that could enrich their lives, reduce suffering, and help them to have a good life and live well as well as have a good death. The lack of children’s (paediatric) palliative and hospice care needs to change. All children and young people with life-limiting, life-threatening and terminal illnesses need to have access to palliative care now, wherever and whenever they need it. This is the aim of the International Children’s Palliative Care Network’s NOW Campaign.
Lucy compares access to palliative care in the United Kingdom, where she lives, to other countries around the world and writes that she sometimes needs to remind herself of the good fortune of the majority of families in that country who have access to excellent palliative care, even though they strive to improve the available support.
Click here to read Lucy’s latest blog.