Lucy Alexandria Watts, is a 22 year old girl living with a life limiting condition called Ehlers Danlos Syndrome. Lucy’s quality of life is restricted as she is hooked up to drips for almost 24 hours a day and spends most of her time in bed. However, this hasn’t stopped her from attaining some incredible achievements.
Along with being ICPCN and Together for Short Lives ambassador, Lucy is a writer, blogger, speaker, Trustee, leader and spokesperson. Lucy is a tireless advocate for children’s palliative care and has campaigned extensively for the improvement of young people’s transition from children’s to adult palliative care. She has also had a strong voice in sensitive subjects like young people with disabilities exploring relationships and their sexuality.
Lucy was recently appointed as a Member of the Order of British Empire in the Queen’s New Year’s Honours List 2016 for her services to young people with disabilities. On receiving her award Lucy Watts MBE said “I cannot tell you what is going through my head right now. It’s a huge honour, more than I can put into words, and I am so immensely proud and happy and honoured that people think me worthy of such an accolade. I can’t believe it still. I am just amazed.” To read more about Lucy and the work she does, click here.