Medical marijuana is changing the lives of children with life threatening conditions

Categories: Community Engagement.

Josh Stanley and his brothers have developed a non-psychotropic strain of marijuana which is drastically reducing seizures for many paediatric epilepsy patients in Colorado. With millions facing life-threatening illnesses, in this talk, Josh outlines the hurdles needed to effect social change and maps a path toward helping those who desperately need revolutionary medicine.


While doctors warm there is no proof that the medical cannabis is effective, or even safe, they were out of ideas to help 5-year-old Charlotte Figi who suffered from a rare genetic disorder which caused her to experience as many as 300 grand mal seizures in a week. She was in a wheelchair, went into repeated cardiac arrest and could barely speak. As a last resort, her mother began calling medical marijuana shops and eventually found Josh and his brothers who, a little reluctantly due to her age, provided her with the medical marijuana they had been cultivating.

Two years later, Charlotte is largely seizure-free and able to walk, talk and feed herself after taking oil infused with a special strain of medical cannabis. Her recovery has inspired a new name for the strain of marijuana she takes that is bred, not to make users high. No longer known as ‘Hippie’s disappointment’ the plant has been renamed Charlotte’s Web.

Amy Brooks-Kayal, vice president of the American Epilepsy Society, warned that a few miraculous stories may not mean anything — epileptic seizures come and go for no apparent reason. However, the success of this treatment for Charlotte as well as numerous other children has led to an influx of families with seizure-stricken children to Colorado from states in the USA that ban the drug.

Charlotte can now walk and talk and her seizures have been reduced to one or none a week and she no longer takes any other medication to control her condition. The Stanley brothers say they now treat 40 paediatric patients with similar or better results at Charlotte.

You can read an article on the story  featured on the CNN website here

 

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