New family guide to SEND system in England

Categories: Community Engagement.

In England, parents and families of children with life-limiting conditions spend many long hours coordinating the appointments, services and professionals needed to meet their child’s complex needs. For these parents, this load reduces the limited and important time they get to spend with their seriously ill children.

Together for Short Lives has published a new guide to assist the families of children and young people with life-limiting conditions join-up their health and social care and education. This free resource helps families understand their rights and make the most of the new special educational needs and disability (SEND) system which is being implemented by government, the National Health Service (NHS), local councils and education providers.

The guide offers the following important information and support for families:

  • What local offers, education, health and care (EHC) plans and personal budgets are, who is eligible for them and how they can help children and families
  • What families rights are and how they can complain and appeal against decisions relating to their child’s assessments, plans and SEND provision
  • Who holds the local SEND system to account and how families can influence it

To read more or download the free family guide to the SEND system, click here.

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