Communications with children and families is the theme of the new edition of the pediatric e-journal produced by NHPCO’s Children’s Project on Hospice/Palliative Services. This PDF resource is available free of charge online.
These articles included in this edition of the e-journal offer suggestions for and examples of engaging in this important aspect of providing pediatric palliative/hospice care.
In the introduction, the e-journal editors write, “We appreciate that a single issue on this subject will not do complete justice to this very broad subject area, but we hope that the articles in this issue will spur increased awareness and discussion of this subject and we note that all communication is a cooperative enterprise with children, adolescents, their family members, the professionals, the volunteers, and the organizations involved in their care. We welcome communications from anyone who has more to offer on these subjects.”
Articles included in this issue:
• “I Stink” by Scott Newport
• Tell Me about Your Journey by Christina L McDaniel, RN, MSN, CHPPN
• Seeing Advance Care Planning as Anticipatory Guidance: A Response to the Seeming Burden of Advance Directives for Infants, Children, and Families by Melody Hellsten, DNP, Patrick Jones, MD, MA, and Brian Carter, MD
• Disclosure by Suzanne S. Toce, MD
• Having the Conversation with Your Child by Paula, Lydia’s mother
• The Caring Decisions Handbook and Online Resource; Helping Parents Make End-of-Life Decisions for Their Child by Vicki Xafis, PhD and Dominic Wilkinson, MD, FRACP, FRCPCH
• Navigating Communication about Death and Dying in the Pediatric Setting by Dana Dombrowski, MSW, LSW and Kelly Gross, CCLS, CTRS
• Communicating with a Child Experiencing the Death of a Loved One: Developmental Considerations by Marilyn A. Fisher, MD, MS
• You Can Do This: A Parent’s Guide to Helping Siblings Cope with Life-Threatening Illness by Nancy Frumer-Styron, PsyD
• “How Do I Tell the Kids?”: Help for Parents Talking to Their Kids about a Cancer Diagnosis by Ann Fitzsimons, BS, MBA
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Learn about NHPCO’s Pediatric Palliative Care Intensive, “Community-Based Pediatric Palliative Care: Building Bridges for Future Success” being offered October 31 – November 1, 2016 in Hollywood, Florida. This program is one of eight Intensives offered as part of NHPCO’s fall conference, THE INTENSIVES. Register online by September 30 to save.