Which session’s did you attend that addressed children’s palliative care?
I all the sessions concerning children’s palliative care. Joan Marston’s plenary session was my favourite, I learnt a whole lot. I also attended Michelle Mering’s session about perinatal loss as well as Busi Nkosi’s session where she discussed euthanasia.
I found the discussion around euthanasia quite interesting. I learnt that most of the time the child does not have a voice, as decisions are often left to the doctors or families. The perinatal sessions were incredibly informative to me as I am currently reading about perinatal palliative care availability in Pretoria as a means of support for the parents with babies who have life-limiting or life-threatening conditions.
Do you offer children’s palliative care services at your hospice? If so, what do you provide?
, we do offer children’s palliative care services at Sungardens Hospice, but only a very small percentage of our patients are children.
Any other thoughts on children’s palliative care you would like to share?
I feel that caring for these kids is definitely one of the most difficult aspects of palliative care. It is heart-breaking.