Compassion in Dying partnered with Subco Trust and the University of Bristol’s Good Grief Connects project to co-produce advance care planning workshops for South Asian elders.
With thanks to Subco Trust members and families, their staff and volunteer team, who all contributed their expertise, experiences, time and enthusiasm to this work.
This report shares the experiences of Subco Trust members and their families of health, care and end-of-life planning.
It provides reflections from members on how to enable more people to consider if advance care planning could help them and have meaningful support to do so if they need it.
It is intended for health and care professionals, people in VCSE organisations, policy makers, commissioners and anyone with an interest in understanding the experiences of different communities when it comes to end-of-life planning
Summary
In April 2022 Compassion in Dying and Subco Trust partnered with the University of Bristol’s Good Grief Connects project, funded by the National Lottery Community Fund’s Bringing People Together programme, to co-produce advance care planning workshops for South Asian elders.
The aim was to create a safe space for South Asian elders of all faiths to talk more about death and dying and plan ahead for their treatment and care, should they wish to do so
Recommendations and findings: the experiences of Subco members:
For health and care professionals and the voluntary sector
- Advance care planning allows health and care professionals to understand people’s religious and cultural beliefs. Emphasising this can help people understand the benefits of recording what matters to them.
- Explaining how making an advance care plan can help family members if important decisions need to be made can open up important conversations.
- The idea that death is a ‘taboo’ topic should not prevent professionals from starting important conversations about advance care planning.
For clinical practice
If using common terms found in end-of-life care, professionals must check that people understand them.
For commissioners, service providers and those developing health information
- Providing access to interpreters and translated materials is essential for people to be able to make decisions about their health and care
- Health information should be developed in a variety of formats, including video or audi
- People need support to complete advance care planning documents:
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