Generally, only around a quarter of all children with cerebral palsy will meet the criteria for children’s hospice services. Selecting the children most in need of specialist palliative care poses a challenge, in view of the unpredictability and uncertainty in the natural history of the condition.
The guide, developed by Helen & Douglas House, outlines the factors that make a child with cerebral palsy more likely to meet criteria for children’s hospice services and to benefit most from specialist palliative care. The guide is informed by evidence-based vulnerability factors, according to survival studies in acquired static brain injury.
‘Vulnerability factors considered for acceptance of children with cerebral palsy’ can be downloaded from the Together for Short Lives website.