‘Courage is compulsory‘ is the story of three young people that are living with life-shortening conditions.
Tori was diagnosed with spinal muscular atrophy (SMA) type 2 at 18 months. Always a creative child, Tori went on to study illustration at university and has illustrated a number of children’s books.
Laura battled many physical and mental conditions during childhood, before eventually being diagnosed with Ehlers-Danlos syndrome in 2012. Laura has since founded Facing Illness Together (FIT), a website which allows people with chronic illnesses to form friendships and provide support to each other.
Sam, who has SMA type 2, always had a love of nature from a very young age. He went on to travel the world and teach sustainable design. He is currently running his own business were he grows micro herbs for local restaurants.
‘Courage is compulsory’ is an intimate look into these young people lives. The book aims to provide a sense of hope for young people living with life-shortening conditions that the possibilities are, indeed, limitless.
“I came up with the title ‘Courage is compulsory’ because you can’t live a life like we do without courage. It takes courage not to be defined by our conditions, to be able to overcome enormous obstacles, and to lead a fulfilled life when so much of it is out of our control,” wrote Lucy Watts MBE, Together for Short Lives and International Children’s Palliative Care Networks ambassador, in her forward of Courage is compulsory.
The book can be downloaded for free – in EPUB or PDF format – from the Lives Worth Living website.