Daily News Roundup – 29 February 2016

Categories: In The Media.

The children living with the world’s rarest diseases

BBC News
Imagine having a disease so rare it doesn’t have a name – or even another sufferer. On the rarest of days – 29 February – three families mark Rare Disease Day.

John Wood is one of a handful of men with breast cancer – and he wants to warn others of the signs

Bristol Post
Helping him manage his symptoms and offering support to his two children is community nurse specialist Emma Campbell, based at St Peter’s Hospice.

Gardens provide an oasis of calm throughout the year

Worthing Herald
Since we moved in to the new hospice almost five years ago our grounds and gardens have established well and I thought you might like to know a few facts and figures about them, writes St Barnabas House chief executive Hugh Lowson.

CHSW to feature in ITV TV competition to win thousands of pounds towards precious lives project

North Devon Journal
Children’s Hospice South West has been shortlisted in ITV West Country West to take part in a TV competition where the winner will receive grants of up to £50,000.

The secret life of a dementia carer: I’ll never forget finding an iron in the fridge

The Guardian
The hours are ridiculous and the money’s dreadful – so why do I do it? Because there’s nothing more rewarding than helping someone to negotiate the world.

Assisted suicide, euthanasia and the European Association for Palliative Care

End of Life Studies blog
When this month’s issue of the journal Palliative Medicine dropped through the letter box, I was interested to see that the headline article is a ‘white paper’ from the European Association for Palliative Care (EAPC) – on euthanasia and physician-assisted suicide, writes Professor David Clark.

From across ehospice editions:

Pune Declaration urges India to implement WHA resolution on integrated palliative care

Rare Disease Day 2016

New executive director at Cedar Valley Hospice