Out-of-hours palliative care session to launch Marie Curie’s free research conference

Categories: Education and Research.

 In recognition of the persistent challenges of providing support for dying people outside of normal working hours, Marie Curie, the UK’s leading end of life charity, will be holding an out-of-hours session to explore this issue at its research conference, launching this week (Sunday 30 Jan).

The out-of-hours session will be held alongside an inspiring series of presentations and talks focusing on improving experiences for everyone affected by dying, death and bereavement.  The full schedule for the virtual conference, which is free to attend and runs from Sunday 30 Jan to Friday 4 Feb, is available now and registration is open.

The charity, which is the largest charitable funder of palliative and end of life care research in the UK, will also be using the conference to launch a new research, policy and public affairs strategy which brings research, policy and practice together under four clear areas of thematic focus:

  • To provide quality care and support for the mental and physical health and wellbeing of people affected by death, dying and bereavement
  • To end financial insecurity at end of life, and ensure that everyone has the support they need to address their practical concerns
  • To ensure that everyone affected by death and dying – including the family, friends and carers of the dying person – are supported through and beyond the end of life
  • To end inequity in end of life experience by ensuring access to excellent standards of care and support for all.

Each theme of the new strategy will be the focus of a specific day of the conference, as well the out of hours session (Sun 30 Jan), and debate on the nation’s readiness to have conversations about death (Mon 31 Jan). Monday will feature the conference’s special guest, Dr Kathryn Mannix, who will join a panel discussion and present insights from her latest book.


Dr Sabine Best, Head of Research at Marie Curie, says:

“I’m looking forward to welcoming people to our conference again this year, where leading experts from our field will present work that relates to the themes of our new research, policy and public affairs strategy.

“How to better provide out of hours care was the top research priority identified by carers, patients and health and social care professionals in the Palliative and end of life care Priority Setting Partnership with the James Lind Alliance. Many people told us about the difficulties in getting the right support for their loved ones out of hours and Marie Curie has highlighted the issue in a number of research calls since the report was published. That’s why we’re kicking-off this year’s conference with a session to showcase some of the research that has been funded to address this issue head on.”

The conference will be virtual, with content running across two hour windows each day so delegates can dip into these bitesize chunks while managing other work commitments.


Register your place now for the Marie Curie Research Conference:



Full Conference Programme:


Sunday 30th January 2022 17:00-19:00 

Out of hours – palliative and end of life care in the community, CHAIR: Julie Pearce 

17:00  ‘In the early hours’ – the role of the Health Care Assistant out of hours Dr Felicity Hasson, Institute of Nursing and Health Sciences Research at Ulster University
17:30  Lone working is lonely – experiences of Marie Curie community-based Healthcare Assistants employed during the Covid-19 pandemic Kasia Patynowska, Marie Curie
Selected abstracts: Out of hours care 
18:00  Dying out of hours: no time to die Murray…Scott Murray, Primary Palliative Care Research Group, University of Edinburgh UK
18:15  Developing a typology for out-of-hours community service provision for patients nearing the end of life and their families Alice Firth, Cicely Saunders Institute, King’s College London
18:30  Patient and public involvement in a Delphi study to determine the most important components of community palliative care outside normal working hours (‘out-of-hours’) Dr Joanna Goodrich, Cicely Saunders Institute, King’s College London

Peter Buckle, Cicely Saunders Institute, King’s College London and Marie Curie Research Voices Group

18:45  End of life anticipatory medication: understanding the financial costs of medicines Lloyd Morgan, University of Cambridge
Monday 31st January 2022 12:00-14:00 

Are we ready for conversations about death and dying? CHAIR: Matthew Reed 

12:00  Welcome Matthew Reed, Marie Curie
12:05  Launch of the new Marie Curie Research, Policy and Public Affairs (RPPA) strategy Dr Sam Royston, Marie Curie
12:20  Society is ready to talk about death and dying – what is stopping us? Professor Annmarie Nelson, Marie Curie Palliative Care Research Centre at Cardiff University
12:50  Tender conversations Dr Kathryn Mannix, Author of the books “Listen” and “With the End in Mind” and palliative care physician
13:20  Panel Discussion Dr Kathryn Mannix, Professor Annmarie Nelson, Lucy Watts MBE (patient advocate), Matthew Reed (Chair)
Tuesday 1st February 2022 12:00-14:00 

Financial insecurity at the end of life, CHAIR: Dr Sam Royston 

12:00  The vicious cycle of fuel poverty and terminal illness Craig Harrison and Mark Jackson, Marie Curie
12:30  Dying in the Margins: A photovoice project investigating the reasons for unequal access to home dying for people experiencing financial hardship Dr Sam Quinn, University of Glasgow
Selected abstracts: Mixed themes 
13:00  Learnings from a portfolio analysis of the UK’s two largest palliative and end of life care research funders Dr Kay Lakin, National Institute for Health Research and Dr Sabine Best, Marie Curie
13:12  Managing social welfare needs in life-limiting illness: is there a system response? Dr Colette Hawkins, South Tees Hospitals NHS Foundation Trust, England 
13:24  What Matters? Using creativity to support PPI engagement: involving palliative care patients and family carers in developing research ideas and proposals Dr Nicola White and Dr Bella Vivat, Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London (UCL)
13:36  How can technology be used to support communication in palliative care beyond the COVID-19 pandemic? Sarah Stanley, Marie Curie Hospice Liverpool
13:48  Motivations and Impact of the Strategic Guiding Council: An International Patient and Public Involvement Panel for Long-term Care Research During the COVID-19 Pandemic Danielle Just, Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Canada

Bianca Tétrault, Faculty of Health Sciences, School of Nursing, McMaster University, Canada

Wednesday 2nd February 2022 12:00-14:00 

Mental health and wellbeing: new ways of supporting people affected by dying, death and bereavement, CHAIR: Professor Paddy Stone 

12:00  Feasibility study of an online Acceptance and Commitment Therapy (ACT) intervention to improve staff wellbeing in palliative care settings: Preliminary findings Dr Anne Finucane, University of Edinburgh and Marie Curie Hospice Edinburgh

Dr David Gillanders, University of Edinburgh

12:30  Can expressing emotions through writing or talking really enhance wellbeing for people with terminal illness? Insights from the Let It Out (LIO) study Daisy McInnerney, Marie Curie Palliative Care Research Department, UCL
Selected abstracts: Mental and physical health and wellbeing 
13:00  Virtual Reality in Palliative Care: a systematic review and meta-analysis Dr Nicola White, Marie Curie Palliative Care Research Department, University College London
13:12  Using Realist Evaluation to Understand Context, Mechanisms, and Outcomes of Social Support Interventions in Hospice Day Services Dr Natasha Mary Bradley, University of West England
13:24  Communication of palliative needs in discharge letters from hospice to primary care Dr Katharine Weetman, University of Warwick
13:36  Getting palliative medications right: intended processes for home, hospital and hospice Dr Sarah Yardley, University College London, Central & North West London NHS Foundation Trust and Dr Sally-Anne Francis, University College London, United Kingdom
13:48  Patient safety consequences of medication incidents in palliative care: mixed method analysis of incident reports Amy Brown and Matt Wills, Division of Population Medicine, School of Medicine, Cardiff University
Thursday 3rd February 2022 12:00-14:00 

Bereavement: experiences of carers, family and services, CHAIR: Idris Baker 

12:00  Inequity in access to bereavement support: Perspectives and experiences of bereaved people and voluntary and community sector bereavement services in the UK Dr Lucy Selman, University of Bristol

Dr Emily Harrop, Marie Curie Palliative Care Research Centre at Cardiff University

12:30  To be confirmed Patrick Vernon (OBE)
Selected abstracts: support for carers, family and services, including bereavement 
13:00  A study exploring the experiences of carers who attended ‘Living Well’ an early access support group for people living with Motor Neurone Disease Yvonne Dunn, Marie Curie Hospice Newcastle & Northumbria University, Newcastle Upon Tyne

Dr Julie Derbyshire, Northumbria University, Newcastle Upon Tyne

13:12  Knowledge requirements and unmet needs of informal caregivers of patients with end-stage kidney disease (ESKD) receiving haemodialysis Michael Matthews, School of Nursing and Midwifery, Queen’s University, N. Ireland
13:24  Unable to say a proper goodbye: the lived experiences of COVID-19 bereaved Professor Lynn Sudbury-Riley, University of Liverpool
13:36  Narratives of COVID: Loss, Dying, Death and Grief during COVID-19 Dr Sharon Mallon, The Open University, Milton Keynes, England
13:48  Death Literacy in the UK– benchmarking levels of death literacy and validating a new measure Dr Lisa Graham-Wisener, Centre for Improving Health-Related Quality of Life, School of Psychology, Queen’s University Belfast
Friday 4th February 2022 12:00-14:00 

Challenging inequity in palliative and end of life care; CHAIR: Professor Anthony Byrne 

12:00  The palliative care response to ethnic minority groups with COVID-19: equal but inequitable – an observational study Dr Sabrina Bajwah, King’s College London
12:30  Improving ethnicity data in palliative care: harms, benefits and overcoming challenges Dr Gemma Clarke, University of Leeds and Marie Curie Hospice Bradford
Selected abstracts: Challenging inequity in palliative and end of life care 
13:00  Palliative care for people in the UK experiencing homelessness who have no recourse to public funds Dr Briony Hudson, Marie Curie

Dr Caroline Shulman, Pathway and University College London 

13:12  Palliative and End of life Care experiences of people of African and Caribbean dEscent (PEACE) during COVID-19 Dr Felicity Dewhurst, Newcastle University and St Oswald’s Hospice  

Dr Marie Poole, Newcastle University 

Patience Kunonga, Newcastle University

13:24  Assessing frailty in people experiencing homelessness: developing and piloting a tool for hostel staff Dr Caroline Shulman, Pathway and University College London
13:36  Experiences of British Muslims with palliative care needs during the COVID 19 pandemic through peer research Dr Briony Hudson, Marie Curie

Representative from The Muslim Council of Britain

13:48  “ACP, what’s that?” Exploring public perceptions of advance/anticipatory care planning in research, among citizens and online Dr Kirsty Boyd, Primary Palliative Care Research Group, University of Edinburgh




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