Early 2021 ehospice shared news about the launch of the Brazilian Network of Paediatric Palliative Care and the Lusophone Group of Paediatric Palliative Care (https://ehospice.com/inter_childrens_posts/paediatric-palliative-care-is-moving-forward-in-the-portuguese-speaking-world/), aimed at increasing awareness about Paediatric Palliative Care and developing evidence-based care in the worldwide community of Portuguese speaking countries (representing over 270 million people in Europe, South America, Asia, Sub-Saharan Africa and Oceania – www.cplp.org).
Prof. Esther Ferreira, a pediatric rheumatologist with a special interest in Paediatric Palliative Care and responsible for the creation of the Brazilian Network, soon realized that to achieve these goals students and professionals of areas involved in the care of children with life limiting and threatening conditions needed tools available in Portuguese and culturally adapted.
This gap could only be filled by the edition of an accessible handbook, written and edited by Portuguese speaking experts. “Each Portuguese-speaking country has its uniqueness, but we perceive many more similarities than differences within our cultures. As such, it is important that we understand ‘our’ Paediatric Palliative Care”, says Esther.
Esther was joined in editing the book by her colleagues Silvia Barbosa and Simone Iglesias, two other Brazilian paediatricians. The trio of editors worked tirelessly to see their dream come true.
They counted on the collaboration of authors from all over Brazil, from the North to the South and from East to West, therefore reflecting very different realities, as well as some Portuguese colleagues. Besides the geographical diversity, the authors were recruited from a variety of different backgrounds and experiences, echoing the interdisciplinarity that characterizes Palliative Care.
After a long year of dedicated work, the book’s was just launched at the IX Brazilian Congress of Palliative Care, which happened in Curitiba from 2-5 November. The Congress, which was attended by more that 2000 people, had a noteworthy paediatric program, including several conferences by many of the book’ authors. One of the international speakers was Dr. Ana Lacerda, from Portugal, who co-authors 3 of the book’s chapters.
This first edition, published by Medbook, is comprised of 14 sections and 77 chapters (authored by 115 experts), ranging from the history of paediatric palliative care to the current research challenges.
The foreword was written by Dr Ross Drake, a New Zealand pioneer in paediatric palliative care, who highlighted the major breakthrough tool that the book represents for the Portuguese-speaking countries.
You can order the book online at Medbook’s site, and either as a paperback or a pdf version
In Brazil, for those that could not attend the Congress, there will be another launch to happen in São Paulo, the largest Portuguese-speaking city worldwide and home to the book’s editors. They are also hoping for a launch in Portugal, to happen as soon as possible in 2023.
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Photo caption: The editors (from left: Silvia, Esther, Simone) at the book’s launch in Curitiba, November 3, 2022.
Authors: Esther Ferreira (BR), Ana Lacerda (PT)