“Dementia creates ambiguous loss. The duality of your loved one’s being absent and present at the same time is confusing, and finding meaning (or making sense of your situation) becomes immensely challenging. Without meaning, it’s hard to cope”. (P.Boss, 2011)
The Alzheimer Society of Canada (ASC) conducted a thorough research review and six Pan Canadian interviews with health-care providers and caregivers who have benefited from grief and loss intervention. Then, ASC developed a practical resource to help health-care providers identify, acknowledge and normalize the feelings of loss and grief experienced by caregivers of a person with dementia— from diagnosis to end-of-life and after caregiving.
This evidence-based resource, developed from a person-centred perspective, was designed to help staff understand how ambiguous loss and grief may be experienced by family members throughout the progression of the disease.
To view the resource, please click here.
To find out more about the Alzheimer Society of Canada, please click here.