First African conference on rare diseases

Categories: Care.

Rare Diseases South Africa (RDSA) and the International Conference on Rare Diseases and Orphan Drugs (ICORD), with the support of Rare Diseases International (RDI), is pleased to introduce the inaugral conference on Rare Diseases, Rarex 2016, in Africa.  The conference will be held in Cape Town, South Africa at the Spier Conference Centre on 19 – 22 October 2016.

Globally, 95% of rare diseases have NO registered treatment available. 

There is a lack of scientific knowledge and quality information on rare and genetic diseases.  Many times the symptoms are uncommon to most doctors and an accurate diagnosis is delayed.  In addition social inequalities and difficulties accessing treatment and care place a heavy financial and social burden on patients.

Treating and providing care for Rare Disease patients requires an extensive scope of knowledge and expertise.  Active engagement and alignment between key stakeholders in the development of rare disease therapeutics, including industry, regulatory authorities, research funding bodies and patient associations is essential.

RareX 2016 will provide a global forum for all stakeholders within the Rare Diseases field, both locally and abroad, to participate in open discussion, enhance models of best practice and share specialist knowledge around rare diseases and orphan drugs.

RareX 2016 incorporates the annual International Conference on Rare Diseases and Orphan Drugs (ICORD) for 2016.  Health care, research, academic and industry professionals as well as patient organisations, regulatory authorities, health associations, public policy professionals, patients, families and caregivers, should attend RareX 2016. 

As a result of this conference, participants will be able to:

  • Learn from the best in the Rare Disease Field and challenge misconceptions and current guidelines.
  • CPD accreditation
  • Benefit from one on one time with forward thinking and innovative practitioners.
  • Broaden their networks for clinical support, referrals and education.
  • Keep up-to-date and to make empowered and educated decisions on what is happening in the Rare Diseases field.

Kelly du Plessis, RDSA, says “There has been a definite need for a quality Rare Diseases Conference in Africa. We are very excited to be presenting this inaugural event!”

View the RareX 2016 programme here