The Guide to Children’s Palliative Care is an essential resource for all those with an interest in planning, commissioning and delivering services and care for babies, children and young people with life-limiting and life-threatening conditions, and their families.
First published in 1997, the fourth edition of the Guide has been written from the standpoint that children’s palliative care is no longer in development but is now a recognised speciality. It has a greater focus on enabling all professionals to better understand the value of a children’s palliative care approach, making the care of life-limiting children everybody’s business.
It provides a 360-degree insight into children’s palliative care: what it is, its principles, purpose and importance to seriously-ill children and families who need it. The Guide seeks to establish and realise the vision that all of these children and their families have access to and receive comprehensive, high-quality, evidence-based services delivered by an appropriately trained, experienced and integrated workforce.
Pioneer in the development of CPC
The updated guide has been authored by Lizzie Chambers from Together for Short Lives and edited by Dr Ann Goldman, who writes in her foreword, “The UK has been a pioneer in the development of palliative care for children and the principles are now well established and recognised. However, there are still significant gaps in the provision for individual children and families in this country and the needs of children and families are even more profound in other countries around the world, especially those with less resources. I hope and believe this guide will be a valuable tool for those developing and planning care for children and families wherever they are.”
Download the Guide
The Guide has been endorsed by The Royal College of Paediatrics and Child Health, the International Children’s Palliative Care Network and the European Association of Palliative Care and can be downloaded as a free resource from the Together for Short Lives website.